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2022 Rowen Family






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Rowen family — full version

 

Pregnancy and childbirth complications: an outdated trend

 

Azizah Rowen, like most moms-to-be, was excited when she found out she was pregnant with her second son, Wilder. But sadly, like too many moms, she was also scared. “I was really nervous because I had had a lot of complications in my first pregnancy with Dash, my older son,” she says.

 

Azizah never had easy pregnancies. While Dash was born healthy and on time, she had two miscarriages prior to having him. In addition, she experienced gestational diabetes, placenta previa, and autoimmune complications, making her at high risk. “I was nervous and on edge the entire time I was pregnant,” she adds. But she was also confused—she and her husband, Craig, had never had any prior health complications. They were young and healthy.

 

Even still, she couldn’t anticipate what happened: waking up in the middle of the night and seeing that something was terribly wrong. She took an Uber by herself to the hospital so that Craig could stay home with Dash, who was two years old. Doctors didn't know why she was having such terrible complications and kept her overnight for monitoring, where she stayed for a couple of days. She thought “it was just a fluke.” But then it happened again.

 

31 weeks into her pregnancy, Azizah’s complications became worse. Doctors told her she needed to stay in the hospital until the baby was born. A week into her hospital stay, things took a turn for the worse. “I was having terrible complications where I was bleeding through the bedsheets,” she says. “And the doctors kept coming in and checking my vitals and at some point, said: ‘This is not safe anymore, we have to get your OB on the phone.’”

 

After evaluating her, Azizah’s obstetrician told her she needed a Cesarean delivery immediately. “You’re never prepared for being told that the situation is becoming dire,” Craig says. Wilder was born nearly two months early and weighed just 4 pounds. “I didn't hear a cry, so then I totally panicked, and I looked at Craig and was like, ‘Is he alive? Is he okay?’ And he just looked at me and he said, ‘I don't know.’” While Azizah stayed in recovery, Craig stayed in the neonatal intensive care unit (NICU) with Wilder.

 

“I had a baby, and I didn't even get to hold him or meet him for two or three days, which was really hard,” Azizah remembers. “And I got to hold him for the first time, and I was just terrified when I walked in there. It was so much worse than I had expected it to be. The sounds of the beeping and all those little babies in incubators, and tubes everywhere. It was really scary.”

 

Once discharged, Azizah spent mornings at home with Dash and then would go to the hospital and hold Wilder all day. She and Craig took comfort in the fact that he was surrounded by an amazing team of nurses. “That was the only sort of consolation when he was in the NICU—knowing that how great the women were,” Craig recalls. “It was the only way we could get any rest.”

 

After a 49-day battle in the NICU, Wilder was finally able to go home. “To this day, they still can't tell me why I had my baby early, and I think that's just a question that sort of haunted me,” Azizah says. “And March of Dimes is the organization that’s continuing to look into answers to those questions. It’s a special organization and we're just honored to have been a part of it for the last five years.”

 

Until the day comes when pregnancy and childbirth in the U.S. is safe for every mom and baby, March of Dimes will be in NICUs across the country, helping families like the Rowens. “Sharing our story’s healing for us and we’re hoping impactful and healing for others,” Craig adds.

 

 

Rowen family - short version

 

Pregnancy and childbirth complications: an outdated trend

 

Azizah Rowen was excited when she found out she was pregnant with her second son, Wilder. But sadly, she was also scared because she never had easy pregnancies. While her first son, Dash, was born healthy and on time, she had two miscarriages prior. In addition, she experienced “pretty much every complication in the book,” making her at high risk. “I was nervous and on edge the entire time I was pregnant,” she says. But she was also confused—she and her husband, Craig, had never had any prior health complications.

 

After an initial scare that led her to being monitored in the hospital for a few nights, 31 weeks into her pregnancy with Wilder, Azizah’s complications became worse. Doctors told her she needed to stay in the hospital until the baby was born. A week later, things took a turn for the worse—she needed a Caesarean delivery immediately. “You’re never prepared for being told that the situation is becoming dire,” Craig says. Wilder was born nearly two months early and weighed just 4 pounds.

 

Once out of recovery, Azizah spent mornings at home with Dash and then would go to the hospital and hold Wilder all day. She and Craig took comfort in the fact that he was surrounded by an amazing team of nurses. “That was the only sort of consolation when he was in the NICU—knowing that how great the women were,” Craig recalls. “It was the only way we could get any rest.”

 

After a 49-day battle in the NICU, Wilder was finally able to go home. “To this day, they still can't tell me why I had my baby early, and I think that's just a question that sort of haunted me,” Azizah says. “And March of Dimes is the organization that’s continuing to look into answers to those questions. It’s a special organization and we're just honored to have been a part of it for the last five years.” Until the day comes when pregnancy and childbirth in the U.S. is safe for every mom and baby, March of Dimes will be in NICUs across the country, helping families like the Rowens.



Brendel Family

Family Story Assets (Word Document, Photos)
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My name is Sue Brendel and I’ve been part of the March of Dimes for more than 14 years. I have three children, Sam (17), Kate and Morgan (almost 10). This is Kate’s story, and it’s also the story of our whole family.
My husband Brian and I had Sam after a normal, full-term pregnancy, although I was extremely sick for my first trimester. After Sam, I had three miscarriages, all around 12 weeks, and with no determination of the cause. This was just incredibly heartbreaking. When I became pregnant with Kate, I felt super sick in the first trimester, as with Sam, so I felt relieved.
At my 20-week ultrasound I could see Kate sucking her thumb! I’d begun to feel better, but then I began spotting. I owned a physical and occupational therapy business at the time. I was at work with a new patient and I wasn’t feeling good. There was more spotting, and my heart sank. I thought, “No, not again!” I knew that something was wrong and went to see my doctor immediately.
By the time I arrived I was in active labor, and was 3 centimeters dilated. The doctor told me, “You’re not even 23 weeks yet. You know what this means…” The look on his face told me everything: We were in trouble. I needed to get to 24 weeks. If she were born right then, Kate’s survival rate would be 10 to 20 percent, at best. My husband arrived, thank goodness, because I felt like I couldn’t breathe — I was in shock. We tried to stop my labor, but then my water broke.
“If she’s going to have a chance,” said the doctor, “we need to deliver her.”
And so we did, on December 1. They’d told us she might not be breathing when she was born, but when she arrived, the doctor said, “She’s trying to breathe.” She weighed 1 pound, 1 ounce and was just shy of 13 inches long. The medical team intubated Kate and rushed her to the newborn intensive care unit (NICU). Later, Sam came in to meet his baby sister, and we had her baptized. One of us was always with her. We felt like we had to protect her and we just couldn’t imagine leaving her without family for even a minute.
The next day, Kate had a grade 2 brain bleed, but I was able to reach in to her enclosed bassinet and touch her. I knew she was in trouble, but honestly I was just in shock and could not believe we were there. At the same time, I was completely in the moment and felt so connected with her the whole time. It felt like we were touching even when we weren’t, and I remember feeling that way for months afterward.
At one point, a tiny hand grabbed my pinky and the other one grabbed my index finger. One of the nurses saw this and picked up a camera. To this day that is one of my favorite pictures: I’m smiling as Kate grasps my fingers.
Later that evening, she developed a grade 4 brain bleed and the nurses seemed more concerned. Labs showed that Kate’s body was shutting down, but she wasn’t in pain and looked restful. She was on life support. We understood that it was time to call family in to say goodbye, but I really didn’t know what to do after that, so I sent them all away. My great regret, to this day, is that we never took a group family photo with Kate.
As she was fading, the doctors looked to me and Brian to tell them what we wanted to do. Our hearts broke yet again as we removed her from life support — she’d had so many wires and gadgets attached to her, and she’d had surfactant therapy three times to help her lungs. She had been through so much.
Brian held Kate first, and sang to her. “Babies should have lullabies,” he said to me. Then he handed her to me and said, “Keep singing. Her heart is still beating.” And so we sang together as Kate’s heart beat for another 14 minutes.
That is just the beginning of the story, though. We left the hospital with her blankets — going home without your baby is just so hard and sad. It was a struggle, and many of our good friends didn’t know what to say or how to be. I decided I would write a letter to teach people what to do, so I went to the card store for some good stationary and I saw a sign for the March of Dimes at this store, advertising Walk for America (now called March for Babies). I thought, OK, this is what we’re going to do!
In my letter I told folks that we were going to walk to raise money and to keep Kate’s memory alive. The donations started pouring in and Sam, who was only about 4, asked, “Where does all this money go?”
“It goes to the doctors and scientists who can save the babies so they can go home from the hospital,” I explained.
“Then we need to raise a million dollars,” he told me.
We’ve done our best. That first year, Sam was the top youth walker in the state of Washington, raising more than $5,000. The next year, we were like — we can raise even more! (My husband and I are slightly competitive…) The March of Dimes organizer told us, “You guys are awesome — you’re the second-highest family earners in the state!” Brian and I just looked at each other as if to say, “Second? No way!”
We attend the National Volunteers Convention every year and I have realized that most of the top-earning families are those who have lost a baby. And that’s hard, because our stories don’t end with us holding a cute little baby who made it home. But I try to remember that I am fighting for my kids, and for other families, so that they never have to go through what we went through.
And when we come together with other March of Dimes families I really feel connected, as if I’m in a roomful of Brians and Sues. And we represent all the people who are trying to make it better for every baby and every family. The March of Dimes gave me a purpose and helped me through my grief, so I could move forward and do something to help and to celebrate Kate, and that brings me joy.










Jolly Family



Full length video:
https://youtu.be/5g4VBtUE22Q

60 Second video:
https://youtu.be/ZgHWBv9zHJs





Sloane was born at 31 weeks, after mom experienced hand, foot, and mouth disease (HFMD) and then PPROM on Sept. 3 (Labor Day!). Sloane was born the next day via emergency csection and spent 46 days in the NICU. She weighed nearly 4 lbs at birth and was the biggest Jolly baby, but despite weighing more than brother and sister at birth, Sloane experienced significant respiratory issues in her first few weeks in the NICU, along with an infection from the HFMD enterovirus that passed through April's placenta. Sloane received surfactant and lots of kangaroo care to address her respiratory concerns, and after 2 unsuccessful attempts, was eventually weaned off oxygen. Today, she is 9 weeks old, having just passed her original due date. She is now thriving and growing at home with the rest of the family.

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