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2022 Rexroad Family









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REXROAD — FULL VERSION

 

Headline:

They say you can work remotely anywhere these days—but for most of us, the NICU isn’t the first place that comes to mind

 

When Clare and Ian Rexroad went in for an ultrasound at 13 weeks, they got shocking news: triplets. “I think in the first few minutes I was laughing hysterically and crying back and forth,” Clare recalls. “It was a very surreal experience. Triplets never cross your mind—ever.”

 

For a triplet pregnancy, it was relatively uneventful. She had weekly doctor appointments because of the risks that can come with having triplets, but by week 19, things were good, and the couple prepared for what lay ahead (for Ian that meant selling his beloved car to buy a minivan).

 

Then, around 24 weeks, Clare woke in the middle of the night with unusual pain. She knew something was wrong and rushed to the hospital. “Especially with a triplet pregnancy, they say, don't take any chances: call, go to the hospital, do what you need to be seen,” she says.

 

She was kept overnight for observation, and after about a day and a half—Thanksgiving Day—Ian was able to go home for a shower and nap. Clare’s mom, dad, and sister were there to keep her company. But while he was gone, Clare’s pain increased: “My doctor came in to do one last check before she left to go have Thanksgiving with her family. And she checked my cervix and said: ‘These babies are coming out.’”

 

Clare’s dad called Ian, and he rushed back just in time. Eliza was born first via emergency Cesarean birth with Ruth and Henry shortly after. Henry weight 2 pounds, 1 ounce. Eliza and Ruth weighted 1 pound, 14 ounces.

 

“A lot of people can say that the day their kids were born was the best day of their lives—but for me it was one of the scariest,” Clare says. Despite the risks that come with an early birth, all three babies had remarkably few complications, other than being incredibly small and needing oxygen support.

 

In the NICU, the girls were in one room and Henry in another because three babies couldn’t fit together with all the equipment that was needed. And so began the family’s NICU journey.

 

A major stressor for Clare during and after her pregnancy (on top of worrying about her babies’ survival) was maternity leave. In 2018, only four states offered paid maternity leave, and Ohio wasn’t one of them—“so that made it feel like you had to save every hour,” Clare says. “Every doctor's appointment was hard because I was like, ‘oh, this is an hour that I won't get of maternity leave later on.’ So that was stressful and emotional.”

 

Clare and Ian both worked from the NICU. They’d bring their computers in every day and set up telework stations on their little tables. “I worked almost as soon as they were born for two months because I knew I wanted to have time with them when they came home,” she says. “I didn't really have a choice.”

 

It’s unacceptable that the U.S. is still the only industrialized nation with no paid family leave. That’s why March of Dimes advocates for paid leave for all families across the country. Moms like Clare deserve better.

 

“It’s so important that March of Dimes advocates for maternity leave, as well for fathers, to ease that burden,” Clare says. “So that you can spend the critical, important time with your kids when they come home from the hospital. And work shouldn't interfere with that.”

 

But the Rexroad family story doesn’t end there.

 

In January 2018, Eliza and Henry successfully weaned to Continuous Positive Airway Pressure (CPAP), which delivers constant air pressure into a baby's nose through a set of nasal prongs or through a small mask that fits snugly over a baby’s nose. However, Ruth started requiring more oxygen. Then an X-ray showed that she had developed pneumonia.

 

On February 1, Clare and Ian received the worst phone call of their lives: they needed to get to the hospital immediately because things weren’t looking good for Ruth. “[The doctor] had determined that she wasn’t going to make it, and so we sat with her and held her together,” Clare says. “It was the worst day of my life.”

 

Henry and Eliza continued to battle in the NICU while their parents grieved the loss of their sister. “We'd started to identify as triplet parents, getting used to what it was going to be when they were two, when they're five, when they're going off to college and then all those plans just suddenly changed,” Ian adds. “And it was hard.”

 

On March 16 they brought Eliza home, and Henry came home a week later on March 23. “It was incredible, that feeling of taking them home and walking out of the hospital with them and their little bucket seats was like walking on air,” Clare says.

 

Fast forward to 2020: Clare and Ian were excited to find out that they were pregnant again. But unfortunately, Clare had a miscarriage at six weeks. They kept trying, and in the summer of 2021, were pregnant again. This time, Clare had a placental abruption and their daughter, Maggie, was born via emergency Cesarean birth at 32 weeks. She weighed 4 pounds, 4 ounces—"so still small and still scary but compared to last time it was a vastly different experience,” Clare says. Maggie spent two months in the NICU.

 

Today, Clare and Ian have three very healthy kids running around the house. “The mission of March of Dimes is so critical,” Clare emphasizes. “Our family has received direct benefit from the research that March of Dimes has done with the use of surfactant on all our children that was lifesaving for them in the NICU. Also being able to spend time home with my kids after they were born was so important and especially when you go through something like we’ve been through you need that time to heal, to grieve, to spend time with your family. Everyone deserves to be able to spend that time with their kids.”

 

 

 

 

 

 

 

 

 

 

 

REXROAD — SHORT VERSION

 

Headline:

They say you can work remotely anywhere these days—but for most of us, the NICU isn’t the first place that comes to mind

 

When Clare and Ian Rexroad went in for an ultrasound at 13 weeks, they got shocking news: triplets. For a triplet pregnancy, it was relatively uneventful. Clare had weekly doctor appointments because of the risks that can come with having triplets, but by week 19, things were good, and the couple prepared for what lay ahead.

 

Then, around 24 weeks, Clare woke in the middle of the night with unusual pain. She knew something was wrong and rushed to the hospital. She was kept overnight for observation, and after about a day and a half—Thanksgiving Day—Clare’s pain increased: “My doctor came in to do one last check before she left to go have Thanksgiving with her family. And she checked my cervix and said: ‘These babies are coming out.’”

 

Eliza was born first via emergency Cesarean birth with Ruth and Henry shortly after. Henry weight 2 pounds, 1 ounce. Eliza and Ruth weighed 1 pound, 14 ounces. And so began the family’s NICU journey. “A lot of people can say that the day their kids were born was the best day of their lives—but for me it was one of the scariest,” Clare says.

 

A major stressor for Clare during and after her pregnancy (on top of worrying about her babies’ survival) was maternity leave. Since the state of Ohio didn’t offer paid maternity leave, she and Ian both worked from the NICU. “I worked almost as soon as they were born for two months because I knew I wanted to have time with them when they came home,” Clare recalls.

 

It’s unacceptable that the U.S. is still the only industrialized nation with no paid family leave. That’s why March of Dimes advocates for paid leave for all families across the country. Moms like Clare deserve better. “It’s so important that March of Dimes advocates for maternity leave, as well for fathers, to ease that burden,” she says. “So that you can spend the critical, important time with your kids when they come home from the hospital.”

 

But the Rexroad family story doesn’t end there.

 

In January 2018, Eliza and Henry successfully weaned to Continuous Positive Airway Pressure (CPAP), which delivers constant air pressure into a baby's nose through a set of nasal prongs or through a small mask that fits snugly over a baby’s nose. However, Ruth started requiring more oxygen. Then an X-ray showed that she had developed pneumonia.

 

Sadly, Ruth passed away on February 1. Meanwhile, Henry and Eliza continued to battle in the NICU while their parents grieved the loss of their sister.

 

Both Eliza and Henry were finally able to go home the following month.

 

Fast forward to 2020: Clare and Ian were excited to find out that they were pregnant again. But unfortunately, Clare had a miscarriage at six weeks. They kept trying, and in the summer of 2021, were pregnant again. This time, Clare had a placental abruption and their daughter, Maggie, was born via emergency Cesarean birth at 32 weeks. She weighed 4 pounds, 4 ounces, and spent two months in the NICU.

 

Today, Clare and Ian have three very healthy kids running around the house and are grateful for the support they received from March of Dimes before, during, and after their pregnancies.














Friedenberger Family

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Our first-born son Ian was born full-term. Our last son, Will, was born at 36 weeks. Our twin daughters, Hanna and Rachel, were born at 25 weeks gestation. They were due June 4th and were born February 24th.  Hanna weighed 1 pound 12 ounces and Rachel weighed 1 pound 11 ounces.

We were prepared for the girls to arrive around 36 weeks gestation due to it being a twin pregnancy but were assured that many woman carry to full-term—we had no reason to believe I would be any different.

At 23 weeks, I had Premature Rupture of Membranes (PROM). Neither Hanna nor Rachel were breathing when they were born. They were immediately taken away, intubated and hooked up to a ventilator. We were told they had a 10 percent chance of survival and a greater than 50 percent chance of having lifelong complications. It was by far the most frightening experience of my life. My husband Kirk and I felt completely powerless.

Hanna spent 86 days in the NICU and Rachel spent 92 days in the NICU.

We waited 4 days to hold Hanna after she came off the ventilator so quickly—that in and of itself was a miracle for a 25 weeker. Rachel was much sicker at birth—she was almost 3 weeks old before we were able to hold her. That was also the first day since the girls were born that they were placed together and we were able to capture our first picture of the girls with Kirk and I. 

Hanna and Rachel each had an oscillator ventilator treatment. Hanna had a grade 2 brain bleed and Rachel had a grade 3 brain bleed. They suffered from anemia, apnea and bradycardia. They each received medication to close their patent ductus arteriosus (PDA). Rachel had two laser eye surgeries for retinopathy of prematurity (ROP) and one surgery to correct strabismus. Hanna had two laser eye surgeries for ROP and six subsequent eye surgeries to correct severe strabismus. Both girls received surfactant therapy.

My babies are now 16 years old but our NICU stay still haunts us. Rachel has many diagnoses including autism, as a result of her premature birth. Hanna has two autoimmune disorders that require constant medical treatment.

We didn’t find March of Dimes until Hanna and Rachel were 3 years old. We walked in WalkAmerica in 2004 for the first time. The following year, in 2005, we formed our family team, Team Tiny Feet. Four months later Share Your Story (SYS) was launched and I began writing on the site. I am deeply grateful for the support and friendships I’ve gained through SYS. It has provided me with more support, love and hope than I could have ever imagined. We continue to walk and raise money for March for Babies and my husband, Kirk and I now serve on the Chicago Chapter Board.








Emily Quinn

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Emily’s Story
         My Mommy had no history of high blood pressure, but at 23 weeks of pregnancy with me she started experiencing preeclampsia (which is a complication during pregnancy, characterized by high blood pressure). Her doctors put her on medicine and rest, but she didn’t get any better. At 25 weeks, my Mommy went to see her doctor because she felt funny—I was born within the hour on September 16th, 2014!   
I was supposed to be a Christmas present for my parents, Jim and Erika
      Because of my premature birthday, I only weighed 1.5lbs,  had jaundice, had a hole in my heart, and couldn’t breathe on my own. Lung development is one of the important things that happens later in gestation. I was put on a ventilator for 8 weeks, had open heart surgery, received blood transfusions (thanks Auntie for the blood donation), and received Surfactant to help my lungs. Surfactant is a medical treatment funded by a grant from the March of Dimes to help babies breathe.
         I was very sick and I had to stay in the NICU (Neonatal       Intensive Care Unit) for 119 days. The first four months of my life were not easy, but I have thrived since going home with Mommy and Daddy.
         I am now a healthy and fiesty 2 year old. I love Mickey Mouse, Dora, and Nemo.  I appreciate your support for the March of Dimes, who gives babies like me a fighting chance!









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