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2022 Rexroad Family









Family Story Assets (Word Document, Photos)
photos and story here
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REXROAD — FULL VERSION

 

Headline:

They say you can work remotely anywhere these days—but for most of us, the NICU isn’t the first place that comes to mind

 

When Clare and Ian Rexroad went in for an ultrasound at 13 weeks, they got shocking news: triplets. “I think in the first few minutes I was laughing hysterically and crying back and forth,” Clare recalls. “It was a very surreal experience. Triplets never cross your mind—ever.”

 

For a triplet pregnancy, it was relatively uneventful. She had weekly doctor appointments because of the risks that can come with having triplets, but by week 19, things were good, and the couple prepared for what lay ahead (for Ian that meant selling his beloved car to buy a minivan).

 

Then, around 24 weeks, Clare woke in the middle of the night with unusual pain. She knew something was wrong and rushed to the hospital. “Especially with a triplet pregnancy, they say, don't take any chances: call, go to the hospital, do what you need to be seen,” she says.

 

She was kept overnight for observation, and after about a day and a half—Thanksgiving Day—Ian was able to go home for a shower and nap. Clare’s mom, dad, and sister were there to keep her company. But while he was gone, Clare’s pain increased: “My doctor came in to do one last check before she left to go have Thanksgiving with her family. And she checked my cervix and said: ‘These babies are coming out.’”

 

Clare’s dad called Ian, and he rushed back just in time. Eliza was born first via emergency Cesarean birth with Ruth and Henry shortly after. Henry weight 2 pounds, 1 ounce. Eliza and Ruth weighted 1 pound, 14 ounces.

 

“A lot of people can say that the day their kids were born was the best day of their lives—but for me it was one of the scariest,” Clare says. Despite the risks that come with an early birth, all three babies had remarkably few complications, other than being incredibly small and needing oxygen support.

 

In the NICU, the girls were in one room and Henry in another because three babies couldn’t fit together with all the equipment that was needed. And so began the family’s NICU journey.

 

A major stressor for Clare during and after her pregnancy (on top of worrying about her babies’ survival) was maternity leave. In 2018, only four states offered paid maternity leave, and Ohio wasn’t one of them—“so that made it feel like you had to save every hour,” Clare says. “Every doctor's appointment was hard because I was like, ‘oh, this is an hour that I won't get of maternity leave later on.’ So that was stressful and emotional.”

 

Clare and Ian both worked from the NICU. They’d bring their computers in every day and set up telework stations on their little tables. “I worked almost as soon as they were born for two months because I knew I wanted to have time with them when they came home,” she says. “I didn't really have a choice.”

 

It’s unacceptable that the U.S. is still the only industrialized nation with no paid family leave. That’s why March of Dimes advocates for paid leave for all families across the country. Moms like Clare deserve better.

 

“It’s so important that March of Dimes advocates for maternity leave, as well for fathers, to ease that burden,” Clare says. “So that you can spend the critical, important time with your kids when they come home from the hospital. And work shouldn't interfere with that.”

 

But the Rexroad family story doesn’t end there.

 

In January 2018, Eliza and Henry successfully weaned to Continuous Positive Airway Pressure (CPAP), which delivers constant air pressure into a baby's nose through a set of nasal prongs or through a small mask that fits snugly over a baby’s nose. However, Ruth started requiring more oxygen. Then an X-ray showed that she had developed pneumonia.

 

On February 1, Clare and Ian received the worst phone call of their lives: they needed to get to the hospital immediately because things weren’t looking good for Ruth. “[The doctor] had determined that she wasn’t going to make it, and so we sat with her and held her together,” Clare says. “It was the worst day of my life.”

 

Henry and Eliza continued to battle in the NICU while their parents grieved the loss of their sister. “We'd started to identify as triplet parents, getting used to what it was going to be when they were two, when they're five, when they're going off to college and then all those plans just suddenly changed,” Ian adds. “And it was hard.”

 

On March 16 they brought Eliza home, and Henry came home a week later on March 23. “It was incredible, that feeling of taking them home and walking out of the hospital with them and their little bucket seats was like walking on air,” Clare says.

 

Fast forward to 2020: Clare and Ian were excited to find out that they were pregnant again. But unfortunately, Clare had a miscarriage at six weeks. They kept trying, and in the summer of 2021, were pregnant again. This time, Clare had a placental abruption and their daughter, Maggie, was born via emergency Cesarean birth at 32 weeks. She weighed 4 pounds, 4 ounces—"so still small and still scary but compared to last time it was a vastly different experience,” Clare says. Maggie spent two months in the NICU.

 

Today, Clare and Ian have three very healthy kids running around the house. “The mission of March of Dimes is so critical,” Clare emphasizes. “Our family has received direct benefit from the research that March of Dimes has done with the use of surfactant on all our children that was lifesaving for them in the NICU. Also being able to spend time home with my kids after they were born was so important and especially when you go through something like we’ve been through you need that time to heal, to grieve, to spend time with your family. Everyone deserves to be able to spend that time with their kids.”

 

 

 

 

 

 

 

 

 

 

 

REXROAD — SHORT VERSION

 

Headline:

They say you can work remotely anywhere these days—but for most of us, the NICU isn’t the first place that comes to mind

 

When Clare and Ian Rexroad went in for an ultrasound at 13 weeks, they got shocking news: triplets. For a triplet pregnancy, it was relatively uneventful. Clare had weekly doctor appointments because of the risks that can come with having triplets, but by week 19, things were good, and the couple prepared for what lay ahead.

 

Then, around 24 weeks, Clare woke in the middle of the night with unusual pain. She knew something was wrong and rushed to the hospital. She was kept overnight for observation, and after about a day and a half—Thanksgiving Day—Clare’s pain increased: “My doctor came in to do one last check before she left to go have Thanksgiving with her family. And she checked my cervix and said: ‘These babies are coming out.’”

 

Eliza was born first via emergency Cesarean birth with Ruth and Henry shortly after. Henry weight 2 pounds, 1 ounce. Eliza and Ruth weighed 1 pound, 14 ounces. And so began the family’s NICU journey. “A lot of people can say that the day their kids were born was the best day of their lives—but for me it was one of the scariest,” Clare says.

 

A major stressor for Clare during and after her pregnancy (on top of worrying about her babies’ survival) was maternity leave. Since the state of Ohio didn’t offer paid maternity leave, she and Ian both worked from the NICU. “I worked almost as soon as they were born for two months because I knew I wanted to have time with them when they came home,” Clare recalls.

 

It’s unacceptable that the U.S. is still the only industrialized nation with no paid family leave. That’s why March of Dimes advocates for paid leave for all families across the country. Moms like Clare deserve better. “It’s so important that March of Dimes advocates for maternity leave, as well for fathers, to ease that burden,” she says. “So that you can spend the critical, important time with your kids when they come home from the hospital.”

 

But the Rexroad family story doesn’t end there.

 

In January 2018, Eliza and Henry successfully weaned to Continuous Positive Airway Pressure (CPAP), which delivers constant air pressure into a baby's nose through a set of nasal prongs or through a small mask that fits snugly over a baby’s nose. However, Ruth started requiring more oxygen. Then an X-ray showed that she had developed pneumonia.

 

Sadly, Ruth passed away on February 1. Meanwhile, Henry and Eliza continued to battle in the NICU while their parents grieved the loss of their sister.

 

Both Eliza and Henry were finally able to go home the following month.

 

Fast forward to 2020: Clare and Ian were excited to find out that they were pregnant again. But unfortunately, Clare had a miscarriage at six weeks. They kept trying, and in the summer of 2021, were pregnant again. This time, Clare had a placental abruption and their daughter, Maggie, was born via emergency Cesarean birth at 32 weeks. She weighed 4 pounds, 4 ounces, and spent two months in the NICU.

 

Today, Clare and Ian have three very healthy kids running around the house and are grateful for the support they received from March of Dimes before, during, and after their pregnancies.














Daddio Family


Family Story Assets (Word Document, Photos)

Kyle and Katie Daddio with their two children, Jack and Josephine, are the 2018 Denver March of Dimes Ambassador Family. Jack was due on March 28, 2014 and was born on December 26, 2013. Josephine was due on June 10, 2017 and was born on March 8, 2017. Kyle shares his family’s story and a father’s perspective on two premature births and the NICU experience.

In August 2013 we discovered Katie was pregnant. We were both healthy and in our late 20s, and at that point the pregnancy was pretty standard. In mid-December, Katie had gone to her 24-week appointment and everything checked out fine. But on Christmas night Katie felt really sick and began vomiting, so we went to the hospital. Her blood pressure was very high and her liver enzymes were way up, too. Tests showed she had HeLLP syndrome, which can be fatal for mom and baby. Suddenly everything happened fast. Doctors and nurses rushed into the room and announced, “Hey guys, we’re delivering this baby now!”

Born at 26 weeks, 6 days, and weighing just 1 pound, 7 ounces, Jack went straight to the NICU at Winthrop University Hospital in Mineola, NY. On his second day of life his lung collapsed. And he struggled with multiple complications with his bowels throughout his time in the NICU. He had surgery at 7 weeks for an infection in his bowels, and because he was so small, the surgery was deemed risky—someone brought us baptismal water. In all, he spent 121 days in the NICU.

Three years later, the pregnancy with Josephine went south at the very same point—26 weeks—but there were fewer problems overall. Given Katie’s history with Jack, the doctors were watching her very closely throughout the pregnancy, and both mom and baby were more stable this time. Born at 26 weeks, 4 days, and weighing just 1 pound, 8 ounces, Josephine needed surfactant therapy for her lungs and she developed a blood-borne infection at 7 weeks. State-mandated newborn screening—thanks, March of Dimes!—caught her hypothyroidism early and critical treatment was begun. She spent 91 days in the NICU.

Navigating all this as a dad was a challenge because I didn’t have a roadmap. I didn’t know what I should be doing, so I threw myself into making sure the insurance and our finances were okay. I spoke with the doctors and social workers regularly so that Katie could focus on spending time with kids in the NICU.

Now I get a call when there’s a dad with a baby in the NICU. It’s one of the most important things I get to do. Sometimes a March of Dimes [NICU Family Support] coordinator will reach out and I’ll go to the hospital, grab a coffee with another dad and we talk. But I also have a good relationship with the nurses—we have a connection. When we were in the NICU, sometimes they would come down the hall and grab me from the family room to chat with the parents. Sometimes a dad freaks out and I get it. I listen and try to help. It doesn’t matter if your kid is in the NICU for 100 minutes or 100 days—it’s hard.

A question I get a lot from other dads is, “When do I have time to process emotionally what’s happening?” [In my case], I would just cry in the shower every morning, because I didn’t want to cry in front of Katie or Jack.

You don’t plan for this and you don’t know what can happen or what effects or complications your child might suffer. Families in the NICU are under a lot of pressure, and I plan to keep working with March of Dimes to make sure that dads have what they need to stay as strong as possible and to hear from someone who’s been there—twice.







Queen Family

Family Story Assets (Word Document, Photos)
Click here to download

Background: Based on family story questionnaire and YouTube video from 9 Family Focus featuring Jackie and Matthew Queen of Indian Land, SC, and the birth of their identical twins (male), Micah and Jace. The twins were born prematurely via c-section at 36 weeks, 1 day. The pregnancy was high-risk and Jackie was diagnosed with twin-twin transfusion syndrome (TTTS) at 17 weeks and underwent corrective TTTS surgery at 18 weeks gestation.

Vitals: Micah weighed 5 pounds, 12 ounces and Jace weighed 5 pounds, 15 ounces. Micah was in the NICU for 5 days. Jace was in the NICU for 19 days.

Interventions: Jace and Micah had trouble breathing, had jaundice and were on c-pap. Jace had jejunal surgery day one to correct his bowel blockage and had a minor heart condition from TTTS that has since resolved. Jace had follow-ups with a gastroenterologist and cardiologist.

Queen family story
My husband and I were excited when we found out that we were going to have identical twins. But our health care provider told us that it was a high-risk pregnancy. The pregnancy was the scary part. With identical twins, there’s a risk of twin-twin transfusion syndrome (TTTS). And at 17 weeks, I was diagnosed with TTTS. It was a really scary time because we didn’t know if the boys would survive. The first victory came after the in utero corrective ablation surgery at 18 weeks.

Micah and Jace were born at 36 weeks, 1 day, via a planned c-section. Most likely neither of the boys would have survived a full-term pregnancy, so the day they entered the world was our second, and biggest, victory.

After they were born, they both went straight to the NICU because they had trouble breathing. And they both had jaundice and were on c-pap. Micah weighed 5 pounds, 12 ounces, and Jace weighed 5 pounds, 15 ounces. Jace had jejunal surgery to correct a bowel blockage and he also had a minor heart condition from TTTS that has since resolved. 

The third victory was that each boy was discharged from the NICU. After 5 days, Micah went home. It’s sad because we had to leave a baby in the NICU. Your heart’s so full with a baby at home, but you’re missing a piece of your heart because one is still in the NICU. After 19 days, Jace came home, and the boys were reunited.

March of Dimes played a huge role. And every year, we support the mission. We do the walk [March for Babies] to show that there are so many families affected by babies that are premature.

March of Dimes has been an incredible community for us. We get to be surrounded by other beautiful families who received care from an incredible organization and hear stories of those impacted by the funding and help from March of Dimes.









Weidman Family


Family Story Assets (Word Document and Photos)

Weidman Family Story

Background: Interviewed Jonathan Weidman and Lisa Cantos of West Harrison, NY, about the births of twin daughters, Jill and Rachel. They were born at 28 weeks, one day. The girls’ original due date was June 22. They turned four on March 31, 2018.

Vitals: Jill born weighing 1 pound, 14 ounces. She was 13 and ¼ inch long.
Rachel born weighing 2 pounds, 3 ounces. She was 12 ¾ inches long.
Both spent 71 days in the NICU.

Interventions: Jill was anemic and needed a blood transfusion and was also under the jaundice lights (we think only Jill was under the jaundice lights, but don’t remember for sure). Both girls had surfactant and feeding tubes. 

He Said/She Said with Lisa Cantos and Jon Weidman
Parents of Twin Girls Born at 28 Weeks, 1 Day
Due Date: June 22, 2014

Lisa: I got pregnant with our fraternal twin girls at 39 through IVF. No one told us that it was considered a high-risk pregnancy, but because of the way I got pregnant, my age and the fact that I was carrying twins…it was treated like it and I had blood tests and ultrasounds frequently throughout my pregnancy. At 22 weeks my cervix started getting smaller and the doctor did a small procedure and put me on house arrest. Then, at 26 weeks, the doctors became concerned about my placenta, too..  

Jon: Early in the pregnancy we were told that 28 weeks was an important milestone in Lisa’s pregnancy.  We were both relieved when a few days before that milestone, Lisa’s test results showed that the girls had a 99 percent chance of making it at least 2 weeks past the deadline.

Lisa: On the morning of March 31st, after a sleepless night and some early morning conference calls, I started bleeding, called Jon and took a cab to the hospital, New York’s Mount Sinai. I panicked that we were going to lose the girls. Once I was examined, the doctor told me that my placenta had abrupted and that the babies would be born that day. 

Jon: Lisa called me at work to tell me. I wasn’t thinking the worst but she was. I was so focused on keeping her from losing it that I couldn’t focus on the big picture or even think how serious things were. When they wheeled Lisa in, they told me it would be two hours for me in the waiting room. I was not looking forward to being alone with my thoughts. Then, like in a scene from a sitcom, the good news came—they rushed to grab me and brought me in for her emergency c-section in the operating room.

Lisa: It was crazy. The babies came so fast, at 12:01 and 12:02 p.m. They scored a 9 on the Apgar scale, and they were doing relatively fine. We were very lucky.

Jon: I saw the babies first, by myself. I was surprised by how long, skinny and red they were. Given that they were both only around 2 pounds, I expected tiny peanuts! After the first day, the girls were always next to each other in the NICU.

Lisa: Jon saw the babies first, without me. I didn’t mind, because I just wanted to know that they were doing well. 

Jon: You don’t ask for the NICU, but the experience had some silver linings. When we took the girls home, we weren’t clueless first-time parents because we had three months of training with the nurses to guide us and teach us how to bathe them, change their diapers and care for them. Plus, the girls were already on a sleep schedule.

Lisa: Our time in the NICU went about as well as we could’ve hoped. There is a saying in the NICU that “It’s two steps forward and one step back,” and that’s so true. While everything felt momentous at the time, the girls’ progress had no catastrophes, just a few minor hiccups. 

Jon: While we were so impatient to get home with the girls, we were also hoping they could go home together. They’d been sleeping together, in a crib, for the final 3 or 4 weeks and Rachel was off her feeding tube before Jill was cleared to leave. 

Lisa: The nurses made all the difference. We spent so much time in the NICU and they helped us with our babies on a day-to-day basis. I was one of the lucky ones to be able to work from the NICU—I wanted all the details. I took one month off, and then worked out of the hospital and our house for 6 weeks—so I could preserve as much of my maternity leave as possible for when the girls finally came home. They were born on a Monday and Jon was back to work the following Monday.

Jon: I visited the hospital every morning and night. I basically just wanted a thumbs-up from the doctor each day to know that the girls were doing well. We were ecstatic when we heard they could go home together. After 71 days in the NICU, it made the day we left that much more special. We were able to go home as a family.

Lisa: We’re still friends with two of the nurses and we keep in touch with our doctor. 

Jon: The bond you develop with the nursing staff is incredible. I just can’t say enough. These are the people who kept our kids alive. Later we made a donation, which they used to upgrade their break room! We’ve been back several times every year to visit. We loved seeing the NICU success stories when we were in the NICU and we love sharing ours.  

Lisa: At 4 years old, the girls are doing great. They’re happy and healthy and enjoying preschool. 

Jon: We first heard of March of Dimes when we were in the NICU, but we didn’t do our first March for Babies until 2016, when the girls could actually do the walk. They walked with their NICU “triplet”—the baby who was in the incubator next to theirs! We will definitely keep walking. It’s an amazing day and also bittersweet to see people walking in memory of babies who didn’t make it. That really makes it clear how lucky we are.










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